The Dutch children with Marshall Smith Syndrome (Nina, Adriana and Joas) in the media.

In Dutch Newspapers, on Television and Radio there was a lot of attention for the Marshall-Smith syndrome. 

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On Whit Monday Anouk, Sicco, Hinke and Matthijs cycled the "Elfstedentocht" (11 Towns Tour). They were sponsored for the MSS Research Foundation.

In just 13 hours they cylced 240 km past all the famous Frisian towns. Their fundraising event brougt in the fantastic sum of € 1,435.00!

The Board of the MSS Research Foundation was very impressed and pleased with the fantastic result.

Restaurant employee Mrs. Sonja Peters will be sponsored by many companies and private donors for her Four Days Walking Tour, the ´Nijmeegse Vierdaagse`. From Tuesday 15 up to Friday 18 July 2008 she shall walk each day fifty kilometres to raise money for the MSS Research Foundation.

Mrs. Peter does this especially for her colleague Ana Godani because her daughter Adriana has Marshall-Smith Syndrome.

The MSS Research Foundation is very happy with this initiative and is curious how it will end!

For you support event or support action for the MSS Research Foundation you can use the following material.

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